Sunday 11 January 2015

The Struggles of Being A Learning Disability Nurse

I've completed my first placement and my first week back in lectures. 

We have had a tutorial where we have reflected on our placement and had chance to talk to fellow students about who was able to experience what in placement. 
It has been good to have that opportunity to do so. It has also allowed us to see the difference in placement areas and the different experiences that each of us had during our six weeks in placement. 

It did come up in discussion how some of us had struggled and had faced negativity towards the branch in which we are studying. 
It is disheartening that even today, in 2015, that we are still facing negative attitudes and opposition in studying learning disability nursing. I have even received some emails from readers of this blog in regards to this as well.  I had a interesting conversation in regards to a student's placement and how they had faced some nurses asking why they had chosen to do learning disability nursing and if they thought they would be able to succeed in finding a job after they graduate.
As I have previously stated, learning disability nursing is still seen as a small niche of nursing.  However, with the population living longer, reproducing later on in life and living riskier lives, we are all experiencing a different level of health and disease than we ever previously have in our modern day world. As you may have noticed, the Ebola outbreak has been onoing for a while now and this has taken many lives.  We are still not yet able to say if the vaccines they are trialling will even work.  It is hard to even say what may happen if the vaccines do not work.  There are also many more people suffering from conditions such as dementia and multiple sclerosis.  This is because we as a population, are living longer. Why do I mention this? Simple.  People with learning disabilities are living longer and are needing more specialised care.  The population of people with learning disabilities is ever increasing and is not going to diminish any time soon. So why are they excluded as a group almost in society? We forever see articles and media focusing on the ageing population and how elderly people may feel segregated and need care and help from those around them.  Why do we never see those with learning disabilities in the media like this? Why do we never see many people with learning disabilities in the spotlight? Perhaps those with learning disabilities are not aware. But maybe it is those around them who may not fight as much for them as for their elderly grandparents.  It has been, and may always be, a common societal view that the elderly are frail and need care and respect. We think of teenagers differently, we think of middle aged men differently.  It is these stereotypes that need fighting on a daily basis.

As a side note, I never experienced any negativity on my placement.  The nurses were very skilled, they were lovely and so very supportive.  They applauded me for doing learning disability nursing, however there was 2 nurses that even admitted if they could go back they would do adult as they like the hospital setting and many of those patients were being resettled into the community. In my placement I couldn't fault the nurses for this.  I personally would like to do community care and manage my own caseload. I would like to go on to do district nursing so I am able to do that extra training in catheter care, wound care etc.  I am not fully settled on that as I am leaving my mind wide open for the experiences I am yet to have in my nursing degree. 

It has been pointed out to me that there is a blog on the Mencap website of another student learning disability nurse facing negativity and opposition.  As I am unaware of where she is based this is difficult to comment on.  On the other hand, I can give my experience. 
On my placement I was able to give medication.  Once you qualify, it is almost expected of you to do this. This is why some universities have maths and english exams before they will even interview you. Medication calculations are important.  I was able to do PEG feeds, I was able to clean and dress the site. I was able to do body mapping charts. I gave injections. I was able to enemas. I completed case notes. All of this can be considered clinical care. Not one of my peers faced any opposition or comments in this, from other student nurses on other branches or people on placement.  Learning disability nurses are becoming more recognised and valued for their skills. 

It is becoming apparent that slowly but surely, it is being recognised that people with learning disabilities need that specialised care.  We need learning disability nurses to fight for those people with learning disabilities. We need people with awareness to make this known.  And I say we as a learning disability student nurse, we as people with learning disabilities, we as health care professionals and most of all, we as people.  I have always seen learning disability nursing as an amalgamation of all 4 branches.  In learning disabilities, you can work with pregnant women and their families, you can work with the newborn they just had that has been noted may have a learning disability.  You may work with children and assisting them in assessment and development.  You can work with teenagers, struggling with regular teenage problems or just trying to explain the process of puberty.  You may work those trying to move away from home and seeking help and support. You may work with those wanting to have a family. You may work with those going through significant trauma in their lives.  You may work with the elderly learning disability population.  You may work with those needing palliative care. You may work with those going through a bereavement.
See where I am going....? 
Learning disability nursing is not and will not be stuck to one area. You are working with people. People change, people develop. And most of all, people are people. Nothing is guaranteed.  Nothing is set in stone.  People with learning disabilities may just go through all the phases in life that the rest of the population go through.  It is all dependent on them, their needs, their assessment, their decisions and their wants.  So please never let someone tell you you cannot.  Learning disability nurses can do clinical skills. We can take blood, we can do I.V's, we can do B.P's, we can do dressings. All it needs is a bit of training.  Nursing is a career that you are always learning and are always adapting.  So if you want to do whatever it is within learning disability nursing, why can't you? Do well at university. Qualify. Find a nice job and a nice, supportive employer. Go on training courses. Never stop learning. And never stop fighting for and raising awareness of people with learning disabilities. Because odds are, they don't have the voice or the platform to do so. You do. 



1 comment:

  1. Please excuse me posting my comment to your blog here, I can't get it to accept my reply and my plea for help to the Mencap webmaster is yet to be answered. Here goes:

    I am a very grateful parent whose son could not have accessed appropriate and effective health care without the skilled and compassionate intervention of an LD nurse. I am not surprised at your discontent but please don't give up. My experience is that generally my son has been treated like he is a member of an alien race by the NHS both with primary and some secondary care. Apart from a few exceptions, when I speak with most health professionals I seem to be talking a different language and as far as reasonable adjustments are concerned you can forget it. You see my son has complex needs and very low mental capacity so cannot consent to treatment or cooperate most of the time as he doesn’t understand what you are trying to do to him. Having said that with skilled and patient intervention it is amazing what can and has been achieved.

    Without sufficient numbers of LD nurses fellow human beings like my son may as well be thrown on the scrap heap. Do you know the worst thing; I don’t think many mainstream health professionals actually give a damn. In fact most in general practice that I have come across do not seem to be competent to advocate for their LD patients at all. Many ward nurses are also very poorly equipped for this role even when supported by parents or carers. I will never forget as an inpatient, ward staff just walking around us whilst we were trying to help my son during seizures whilst he was lying on the ward floor. Regarding primary care in our CCG currently only about half of our Practices even carry out annual health checks and I have yet to meet a GP that knows anything about the mental capacity act. Something tells me people aren’t taking this seriously.

    Given my personal experience I spend a lot of time now working with disability groups, local special school, my County LD Partnership Board, Local Authority, hospital special needs group and CCG to make sure families and patients living with LD are not forgotten. It’s hard going sometimes especially with Health and on a personal level I am still struggling to try and get my now adult son effective on going health oversight due to both his complex needs and to manage a floppy colon which is the result of chronic constipation aided by professional neglect over many years.

    What we need is more training for all and many, many more LD nurses like you. How we get there I have no idea but we need you all to push from the inside whilst people like me push from the outside. Eventually we will get there and your vital profession will be recognised and valued for what it is. Please believe me when I say that families living with learning disabilities and additional needs are in awe of what you do and grateful doesn’t begin to cover how we all feel about what you do.

    My advice to all LD nursing students is if you want an easy ride then go and do something else. If you want to make a real difference to the lives of vulnerable people then stick with it as this must be one of the most satisfying and rewarding careers that you can pursue.

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